Autism-Lil David's Autism Page

This page was a constant work in progress. I Have neglected it for many years.I used to update it each time A new fact or incident affecting David or our life with autism occured. It is very long, as it was a journal of our experiences with our son and our fight to help him succeed. Unfortunately it now serves as a memorial to my beautiful son David, who was taken from us much too soon in november of 2016 He was 19 years old and had grown into a beautiful young man. It has taken me this long to cope with the loss and address it to the world. For this I apologize to those of you who havbe stumbled across it in the years prior when you were looking for help on your own journey into the world of asd's. I hope it has been of some use. His mother Renae and my selfwent through years of literal hell and suffered much at the hands of uncaring and greedy educators. Someday soon I will tell that story here. But know this, in the end, we won. We won a settlement valued in the 3 million dollar range when you added up the cost of his services over the 13 years that followed that victory. So, if you are in a similar spot, .....Strive on! It can be done.

Click photo above to go to the Li'l David picture page.
Edited with love on 04/09/2003

Contrary to popular belief, autism is not retardation or mental illness.
It is a developmental disorder that affects speech,
learning and social skills. The majority of autistics tend to be
physically perfect with no deformities.

It was an average delivery. David was a normal baby except that he did not react well to regular formula, and as an infant he would often become very stiff when he was held.

His speech and motor development seemed normal and even a little above average. He held his head up within just a few days of his birth and rolled himself over long before most infants. By 10 months he was walking well, and he had a 10-word/sound vocabulary by 14 months. He would perform simple tasks if asked , such as putting his diaper in the trash.

At about 15 months, David began to withdraw. He ceased to respond to his name, his speech disappeared entirely, and he began to display bizarre behaviors such as head banging. As this got worse, we finally took our concerns to his doctor.

I personally believe that his condition may have been caused by immunizations. The preservative "thimerasol" was used in the mmr vaccine, Thimerasol has mercury in it. Mercury poisoning and autism are symptomatically identical.

Merck Pharmaceuticals, the manufacturer of the mmr vaccine, has since discontinued use of thimerasol as a preservative. however, they went ahead and used up millions of units containing it after stopping it's addition to new batches. I believe they did this to avoid the appearance of liability or admission of wrong-doing.

Just before he turned 2, David's doctor diagnosed him as clinically deaf and referred him for a hearing test. We could yell out his name or bang pots and pans together behind him and he would not react, yet when we started one of his videos when he was out of the room, he would come running. The hearing test confirmed that David could indeed hear.

As David turned 2, we knew he was not deaf, but he no longer had any speech. At that point, we contacted Tri-Counties Regional Center, a State agency which provides services for the developmentally disabled. Since there had been the initial diagnosis of deafness, the school district was brought in as well, whose assessment placed David at 9-10 months old developmentally. Regional Center doctors would only diagnose him as "developmentally disabled" and asked to see him again before he turned 3.

Although the so-called "experts" would not commit to this diagnosis, his mother and I knew by that time that David was autistic.

David was accepted as a client by the Tri-Counties Regional Center and assigned to a fantastic caseworker, Karin, who put us in contact with an excellent occupational therapy clinic and a wonderful speech pathologist. Between the ages of 2 and 3 years, David received 2.5 hours of speech and 1 hour of occupational therapy each week at no cost to us as part of the Early Intervention Program. Fortunately, children entering the Early Intervention Program today receive a much more intensive program (20 hours per week of behavioral services, speech, OT., etc.). As David received his earliest services, we were provided with resources that we never knew existed.

We read and researched the disorder and found that it was not as hopeless as it initially seemed. We tried out treatments that had been successful for other autistic children, but with no success for David. With the megavitamin therapy, David would say a word here and there, but it made his diarrhea significantly worse.

Autistic can often live productive lives if we accept their differences without forcing them into a "normal" society that they just don't fit into.

While building this site, I have learned about autism from an autistic point of view. If you are interested in acceptance rather than dogged pursuit of a cure, or if you have tired of said pursuit, go to the "Don't Mourn for us" link. It may change your perspective on autism and related disorders.

Regardless of the outcome, I feel blessed to have David in my life. Most people who meet my special son are impressed by his total innocence.

As David's third birthday approached in the spring of 1999, doctors were no longer reluctant to diagnose his autism. David has started to show improvement in several areas. David is now able to communicate with us using the Picture Exchange Communication System (PECS), and he knows half a dozen ASL signs which he uses to communicate his needs. David just turned five and is still a real handful. He still engages in some self-injurious behaviors such as head banging, although these are on the decrease as his communication skills increase. He usually bangs when he is frustrated or bored. It becomes a real problem during breaks from school since his sensory needs are not being met to the extent that he has become accustomed to.

He is still in diapers (provided by the Regional Center) and requires constant supervision. We hear a word here and there, but getting him to say it again is impossible at this point -- except for his recent use of the word UP (or UP-uh). He currently takes Klonipin and Benadryl to help him sleep. David has no fear of danger or the unknown, and he will run away at any opportunity (this has also improved, however, since the in-home behavior intervention program). Locks and alarms remain on every door and window in the house.

After the long and trying IEP process, he started a special education preschool after he turned three and loved the routine and structure. His teachers were impressed with his progress.

The IEP process required the services of an attorney, also provided to us at no expense, to insure that David was placed in the most appropriate classroom. We are especially grateful to Cheryl for her input and support throughout that IEP process as we didn't have a clue what we were in for.

In the fall of 1999, David was placed in a different classroom due to relocation to another county.
It was a difficult transition for all of us. The Regional Center in the new county was not as accommodating at first, but they and the school district realized we knew what was best for David and in the end helped greatly.

The most important fact to remember when your child is diagnosed with a disability is that the people whom we entrust to provide services for our children have the added responsibility of denying those services in order to save money! If you are willing to accept two 20 min sessions of speech therapy per week, that is all your child will receive.

The 2000-2001 school year has been exceptionally trying. David's self-injurious behaviors had increased significantly and his communication skills were basically nonexistent. We have attended TWELVE IEP meetings in less than a year's time. At each IEP meeting, we requested much-needed services but were consistently denied. Fortunately, a newly-established parent advocate group stepped in on David's behalf and convinced someone in a high place that David's program was absolutely inadequate. Shortly thereafter, we were offered about half of what we had been asking for (including a 1:1 behavior aide in the classroom).

The newly acquired school services combined with the in-home behavior program provided by the Regional Center turned out to be an effective combination. David's self-injurious behaviors have decreased significantly so he is now better able to tolerate classroom instruction, speech therapy, etc. He now has a communication system that works for us (PECS and some sign language); however, we continue to work on speech and language. We feel that we have won a considerable battle in the tremendous war which lies ahead. In the meantime, we will continue to arm ourselves with knowledge of the special education law and keep close tabs on what goes on in the overall program. What works for some may not work for David, and we feel that we are the best judge of what works for him. Overall, he is a MUCH happier boy than he was several months ago, so all our fighting has been worthwhile!

Unfortunately, we were forced to leave the county where we had made so much progress, in July of 2001. We moved to a place where we had heard services were much better, and easier to come by.

This proved to be false. So, the fight continues, but on a new battleground, and with us better armed for the fight. We also found a very good private program here, but the cost is prohibitive.

In the very first contact we had with the new district, they attempted to take away all of David's services. They almost succeeded. We were tricked in to signing an iep during a meeting that we thought was only a admittance meeting. The staff concealed the bulk of the new iep they had written, and then handed it to us on our way out the door

After the new district talked to our old one, the changed their Tune, and gave us what we wanted.

David will continue his current iep, and will retain all of his services for this school year.

FOOD: His favorite foods are: Oranges, bananas, salty chips of any kind, lunchmeat, raisin bread, hamburger meat, Goldfish Crackers, fruit snacks, frozen egg rolls, French fries, chicken nuggets, pizza, Ling-Ling Potstickers with ginger sauce, Little Debbie's Pecan Pinwheels, and Top Ramen (chicken flavor), and Sloppy Joe's. Due to his intolerance of milk, he drinks a lot of vanilla flavored Soy-Yum from Trader Joe's.
He seems to enjoy his food more if it has hit the floor first.

SWINGING: David loves to swing. Day or night, hot or cold, it doesn't matter. He loves to swing.

COMPUTER: David has discovered the computer in a big way. Since he learned to manipulate the mouse, he has enjoyed clicking and seeing the results (this has resulted in quite a few lost and new shortcuts and icons). As of late, he has become very adept at using the computer and knows which icons start which programs.

His favorite thing is to click the mouse and turn the monitor on and off with his feet. He has become very insistent about these and will get between me and the monitor whenever I sit down to work on the computer. A few months ago, I built him his own computer and he has gotten very good with it. He loves the Sesame Street CD game and freeware children's paint programs such as Le Paint Petite and Child's Play. The first computer game he played was Crying, Screaming Baby (a Clickamajig game from Nickelodeon where the baby cries until he drags it a bottle, toy or pacifier). Recently he has learned to play the freeware game "elfbowling" and drives us nuts with it.

TV AND VIDEOS: David loves Teletubbies, Barney , Blues Clues and Sesame Street. Also Face and Spot. He gets very excited whenever these are on and will watch them (off and on) for hours. Lately, though, he seems to have lost some interest. by may of this year, David has become very adept with the vcr. He starts his own tapes, and lately has been watching them

WATER: Anytime David sees water he must play in it, which means we have to keep him out of the bathroom unsupervised. This is of great concern to us in the wake of several drowning deaths of autistic children nationwide. When David visits me, most of his time is spent in the backyard with the hose. :^) In his new home, David has a large backyard, and two small pools in which to play. This makes him very happy, and tires him out so he sleeps better.

SCOOPING: He enjoys scooping dried beans, birdseed, or rice with a cup. Also he likes to dig and run sand through his fingers. recently he has begun to throw sand and dirt, so this behavior has become problematic. He also began to pour sand into all of his toys and wrecked several of them. Since we moved to his new home, there is not sand everywhere, so David has lost interest in this activity.

HAND SLAPPING: David enjoys having his hands slapped. If we move our hand back and forth in front of him, he will always hold up his so we can slap a hand back and forth on his. He has liked this as long as I can remember.

DRAWING: We purchased a Magnadoodle for him and he loves it. If you have an autistic child who loves to draw, you should get one. If your child is like David, he will spend his time writing on it instead of the walls, furniture, pets, parents, etc. David loves to color, but is not real picky about the palettes he chooses for his art. At the time of this writing, David is on his fifth magnadoodle. He is very hard on them.

BALLOONS: David LOVES everything about balloons! He can gently bang his head on the balloons to fulfill a sensory need. We fill the balloons up with water for play in the bathtub. We realize there is a choking hazard involved with balloons so we are careful to watch him and pick up the pieces of the broken balloons. He has recently learned to pick up the broken balloon and place it in the trash can before asking for a new one.

DEEP PRESSURE: David craves deep pressure. He will get underneath his beanbag chair so we can put pressure on top of him, and he enjoys wrapping himself up in blankets these days. We also do joint compression with him when he seems to be distressed.

ORAL MOTOR ACTIVITIES: David's apraxia could quite possibly be the main culprit for his lack of speech. The only treatment we know of for the apraxia is oral motor activities. To desensitize and exercise his mouth, we have been using a NUK, battery-powered toothbrushes ($5 at Wal-Mart), Wiggle Pens with the pen removed (also provides a vibration/banging for his head), whistles (not TOO shrill), bubble for blowing, whistle which blows bubbles (we've covered the hole so it just blows the bubbles), and party blowers. He attempts to blow balloons but doesn't blow quite hard enough yet. He enjoys all of the oral motor activities as they also provide him with sensory input. Anyone with more fun suggestions, PLEASE send them! Since David has been doing these activities, we have noticed more and more vocalization.

JUMPING: The trampoline has been a great investment. He loves to jump (more pressure). Before the trampoline, David had lots of good times jumping on the beds.

David is an affectionate child, which is unusual among children with his condition. Many autistics are completely withdrawn, often ignoring their parents and siblings altogether.

Daily life is a challenge with David. He is extremely active and does not appear to understand much of what is said to him, nor does he have any fear of danger or the unknown (his receptive language has improved greatly since receiving the in-home behavior services). He is, however, extremely beautiful and special, and we love him just how he is.

I once read an article that compared being autistic and trying to understand society to walking into a play and finding you are the star, only you haven't read the script. You don't know what to do or where to go. Sounds tough, huh? I would love to spend 20 minutes in his sweet little head just so I could relate.

Hello! I am Dave Richards. David is my son.
He has changed my outlook on developmental disorders and the mentally challenged forever. He is the best thing that has ever happened to me.

He has forced me to become an advocate for autism. If I can help you in anyway in your fight with the schools and public agencies. feel free to contact me at the email addresses below.

I hope this page is of some use to you if there is an autistic or PDD person in your life. I have posted this site with the hope that people in similar situations will read it and know they are not alone and that others know what it is like to raise an autistic child.

Recently I have been using Linux and Netscape's composer for main editing
And kedit, Pico, and that evil torture device known as Vi for html tweaking.
If you would like to know more about Linux and open source software,
Check out "Dave's other pages" link on the home page.

"If a man does not keep pace with his companions,
perhaps it is because he hears a different drummer.
Let him step to the music he hears, however measured or far away."

How can you call yourselves "advocates for children" when all you advocate is taking away the very services that help the child to progress? That is like calling yourself a saint when all you do is sin!

This RingSurf
Autism Support Net Ring
site owned by Dave Richards.

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